Father Of 2-Year-Old With Rare Congenital Hair Syndrome Grateful For Agong's Visit

The father was overjoyed when the royal couple took photos with his daughter, who has been enduring social stigma.

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The father of a two-year-old with a rare congenital syndrome in Bintulu, Sarawak has expressed profound gratitude towards the Agong and Raja Permaisuri for their concern during their visit

Yang di-Pertuan Agong Al-Sultan Abdullah Ri'ayatuddin Al-Mustafa Billah and Raja Permaisuri Agong Tunku Azizah Aminah Maimunah Iskandariah are currently on a 'Kembara Kenali Borneo' tour through Sabah and Sarawak.

Roland Jimbai is the father of two-year-old Missclyen Roland, who was born with congenital generalised hypertrichosis, a genetic disorder that has caused her to grow excessive hair across her face and body.

Upon learning of the royalties' planned visit to Kampung Penan Muslim, near where they live in Bintulu, Roland and his wife decided to bring their daughter to meet them.

The proud father was overjoyed when the royal couple held his daughter in their arms and took photos with her

He was also grateful towards the Agong for expressing words of encouragement to him.

"I am incredibly happy that we had the chance to meet the King and Queen. I am still at a loss for words," Roland shared, when contacted by New Sarawak Tribune.

He recalled the King saying, "Take good care of this child, as this child is God's grace."


Hasrat bapa kepada anak istimewa yang tinggal di Kampung Penan Muslim,Bintulu tertunai apabila dapat merakamkan kenangan dengan YDPA Agong dan Permaisuri dalam siri Kembara Kenali Borrneo di Bintulu. Adik Missclyen, 2 tahun, yang cukup istimewa kerana dilahirkan dengan wajah dan tubuh berbulu lebat akibat sindrom congenital generalised hypertrichosis (CGH). Kisah mereka ini pernah disiarkan dalam Majalah 3 tahun lalu. #umpsa #jommasukipt #jommasukumpsa #agongtuankucanselorumpsa #ijazahdualumpsa #umpkiniumpsa #TeknologiUntukMasyarakat #kembarakenaliborneo #RajaBerjiwaRakyat #menjelangharimalaysia #umpkinidikenaliumpsa #kembarakenaliborneo #bintulu #harimalaysia #sarawak #penanmuslim #YDPA #permaisuri #majalah3

Santai - Faizal Tahir

It was previously reported that the couple faced social stigma when Missclyen was born with the rare genetic condition

Roland had told Harian Metro that people often give Missclyen – the youngest of their four children – strange looks, and some had even called her 'animal child' before.

"Initially, we were really hurt and felt stressed. We felt upset and began avoiding bringing her to public places, except for hospital follow-ups. We were so afraid of what people were going to say," he said.

However, they have since overcome the fear and accepted that everyone will look different

They also understand that many have never seen their daughter's rare condition before, hence the curious looks, such as when they also first saw their own daughter at birth.

Meanwhile, regarding her health besides the hair growth, Roland said his daughter is doing well and continues to have occasional check-ups at Bintulu Hospital.

In February, a single mother shared what it's like taking care of a child with brittle bone disease, another genetic disorder:

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